Article
Parental perspectives on the communication abilities of their daughters with Rett syndrome.
Developmental neurorehabilitation - 1 Jan 2016
Urbanowicz Anna, Leonard Helen, Girdler Sonya, Ciccone Natalie, Downs Jenny
Abstract excerpt
OBJECTIVE: This study describes, from the perspective of parents, how females with Rett syndrome communicate in everyday life and the barriers and facilitators to successful communication. METHODS: Sixteen interviews were conducted with parents with a daughter with Rett syndrome with a pathogenic mutation in the methyl-CpG-binding protein 2 gene. Interviews were recorded and transcribed verbatim. Transcripts were...
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