Article
Illness perceptions, risk perception and worry in SDH mutation carriers.
Familial cancer - 1 Mar 2014
van Hulsteijn L T, Kaptein A A, Louisse A, Biermasz N R, Smit J W A, Corssmit E P M
Abstract excerpt
Succinate dehydrogenase (SDH) mutation carriers are predisposed for developing paragangliomas. This study aimed to explore illness perceptions, risk perception and disease-related worry in these individuals. All consecutive SDHB and SDHD mutation carriers followed at the Department of Endocrinology of the Leiden University Medical Center (LUMC), a tertiary referral center, were eligible for inclusion. Illness...
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