Article
Impact of direct-to-consumer genomic testing at long term follow-up.
Journal of medical genetics - 1 Jun 2013
Bloss Cinnamon S, Wineinger Nathan E, Darst Burcu F, Schork Nicholas J, Topol Eric J
Abstract excerpt
BACKGROUND: There are few empirical data to inform the debate surrounding the use and regulation of direct-to-consumer (DTC) genome-wide disease risk tests. This study aimed to determine the long term psychological, behavioural, and clinical impacts of genomic risk testing for common disease. METHODS: The Scripps Genomic Health Initiative is a prospective longitudinal cohort study of adults who purchased the...
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