Article
Improving test properties for neonatal cystic fibrosis screening in the Netherlands before the nationwide start by May 1st 2011.
Journal of inherited metabolic disease - 1 Jul 2012
Cornel Martina C, Gille Johan J P, Loeber J Gerard, Vernooij-van Langen Annette M M, Dankert-Roelse Jeannette, Bolhuis Piet A
Abstract excerpt
When new technical possibilities arise in health care, often attunement is needed between different actors from the perspectives of research, health care providers, patients, ethics and policy. For cystic fibrosis (CF) such a process of attunement in the Netherlands started in a committee of the Health Council on neonatal screening in 2005. In the balancing of pros and cons according to Wilson and Jungner...
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