Article
Cystic fibrosis across Europe: EuroCareCF analysis of demographic data from 35 countries.
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society - 1 Dec 2010
Mehta Gita, Macek Milan, Mehta Anil
Abstract excerpt
BACKGROUND: A 35-country European cystic fibrosis (CF) demographic registry was developed to compare outcomes (EuroCareCF EC-FP6). METHODS: We applied methods that had successfully created country-specific registries inviting wide participation to obtain consent and collate demographic and CFTR g...
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