Article
Assessing the privacy risks of data sharing in genomics.
Public health genomics - 1 Jan 2011
Heeney C, Hawkins N, de Vries J, Boddington P, Kaye J
Abstract excerpt
The protection of identity of participants in medical research has traditionally been guaranteed by the maintenance of the confidentiality of health information through mechanisms such as only releasing data in an aggregated form or after identifying variables have been removed. This protection of privacy is regarded as a fundamental principle of research ethics, through which the support of research participants...
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