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From Genetics to Genomics: Ethics, Policy, and Parental Decision-making

22 Jul 2008

Abstract excerpt

OBJECTIVE: Ethical evaluation of genetic testing in children is traditionally based on balancing clinical benefits and risks. However, this focus can be inconsistent with the general practice of respecting parental decision-making about their children's health care. We argue that respect for parental decision-making should play a larger role in shaping pediatric genetic testing practices, and play a similar role...

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PMID: 18647793
DOI: 10.1093/jpepsy/jsn075

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