Article
Familial disease with a risk of sudden death: a longitudinal study of the psychological consequences of predictive testing for long QT syndrome.
Heart rhythm - 1 May 2008
Hendriks Karin S W H, Hendriks Margriet M W B, Birnie Erwin, Grosfeld Frans J M, Wilde Arthur A M, van den Bout Jan, Smets Ellen M A, van Tintelen J Peter, ten Kroode Herman F J, van Langen Irene M
Abstract excerpt
BACKGROUND: Since 1996, in the Netherlands, cardiac and molecular screening has been performed in families with the long QT syndrome, a potentially life-threatening but treatable cardiac arrhythmia syndrome. The psychological consequences of predictive cardiac and molecular screening in these families are relatively unknown. OBJECTIVE: A psychological study was initiated to investigate the extent and course of...
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