Article
Parents' experiences of universal screening for haemoglobin disorders: implications for practice in a new genetics era
23 Feb 2008
Abstract excerpt
BACKGROUND: England is the only country in the world that currently has universal population screening for haemoglobin disorders through linked antenatal and newborn screening. Little is known about the acceptability of such screening. AIM: To explore parents' experiences of, and attitudes towards, new universal genetic screening for haemoglobin disorders. DESIGN OF STUDY: Narrative interview study. SETTING:...