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Article

Parental attitudes to the identification of their infants as carriers of cystic fibrosis by newborn screening

18 Aug 2006

Abstract excerpt

AIM: To investigate parental attitudes to cystic fibrosis (CF) carrier detection of their infant by newborn screening (NBS). METHODS: Data were collected from a postal questionnaire sent to parents of infants identified as CF carriers by NBS in 1996-1997 (inclusive) and 2001 in Victoria, Australia (n = 66). RESULTS: Almost all parents remembered their child being identified as a CF carrier (97%: 1996/1997; 100%:...

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PMID: 16925540
DOI: 10.1111/j.1440-1754.2006.00917.x

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