Article
Attitudes and distress levels in women at risk to carry a BRCA1/BRCA2 gene mutation who decline genetic testing.
American journal of medical genetics. Part A - 15 Jun 2003
Lodder Litanja, Frets Petra G, Trijsburg R Willem, Klijn Jan G M, Seynaeve Caroline, Tilanus Madeleine M A, Bartels Carina C M, Meijers-Heijboer E Johanna, Verhoog Leon C, Niermeijer Martinus F
Abstract excerpt
Genetic testing enables women at risk for hereditary breast and/or ovarian cancer to find out whether they have inherited the gene mutation, and if so, to opt for undergoing frequent surveillance and/or prophylactic surgery. However, the option to know about one's genetic status is not always seen as a benefit by women at risk. Motives for declining genetic testing were explored in 13 women at 25% or 50% risk to...
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