Article
Issues of consent and feedback in a genetic epidemiological study of women with breast cancer.
Journal of medical ethics - 1 Apr 2003
Richards M P M, Ponder M, Pharoah P, Everest S, Mackay J
Abstract excerpt
Women (N=21) who had had breast cancer and had been enrolled in a large genetic breast cancer epidemiological study were interviewed about their experience of participation in the study, their attitudes to the confidentiality of data, and the feedback of personal and general research results. Col...
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