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Article

The decision to continue: The experiences and needs of parents who receive a prenatal diagnosis of holoprosencephaly

26 Jul 2002

Abstract excerpt

Holoprosencephaly (HPE) is a condition characterized by a defect in the development of the midline embryonic forebrain. When detected prenatally, the diagnosis of HPE offers parents a poor but often uncertain prognosis. Since the majority of parents receiving a prenatal diagnosis of an abnormality terminate their pregnancies, few studies have examined parents' experiences and needs surrounding the decision to...

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PMID: 12376939
DOI: 10.1002/ajmg.10657

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